10 things you *SHOULD* say to a mum with an eating disorder

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My "10 things *NOT* to say to a mum with an eating disorder" post the other was intended to help people wishing to support someone they love to avoid saying some of the biggest clangers I've been on the receiving end of.

But it was really only half of the story wasn't it? And when Rosie Molinary suggested I write the other half I simply responded "what a good idea". But it has been much harder to write than the first.

Because sometimes no matter what you say, it will seem like the wrong thing.

So here are some suggestions of comments I have found immensely helpful and encouraging. A lot of these would relate to any adult with an eating disorder, while some are specific to mothers. But just remember - everyone will react differently to things you say for a variety of different reasons. And often what you say will be misinterpreted by the person's eating disorder. I have seen the blank and puzzled look on my husband's face on more than one occasion as I've reacted completely unexpectedly to something he felt was innocuous.

So if your carefully considered comment doesn't goes as planned - don't despair and don't give up...ever!

1. I believe you - to be told this is so much more powerful than you can imagine. I was so sure my gp would laugh at me the first time I went to see her - and when she didn't I felt immediately like I could really trust her.

2. I don't know the right thing to say but I'm here for you - you can't fault honesty, and when your eating disorder is looking for any hint of trickery in someone's voice honesty is always the best policy.

3. I will stand by you through this - this again is one from my gp. She promised to be loyal to me no matter what. So I know no matter how badly I behave one week I can always go back the next and there is nothing to apologise for - ever.

4. You can recover - I did not know this. And even once people started telling me this it took me a long to believe it - so make sure you keep saying it, because it is true!

5. You can still be a good role model for your kids while you are recovering - I worried endlessly that I would only feel like I could be a good mother once I was recovered, but I can see that I am able to share the wonderful insights I am gaining (such as learning to put situations in perspective and positive self talk) with my children in an appropriate way. And this is what good parenting is all about. It's not about waiting until you are a perfect human being.

6. You will be a better, more aware mum now that you've identified you have an eating disorder - I am so conscious to be aware of personality traits my children display which are red-flags for me, such as catastrophising and being down on themselves - and I am now able to support them with the strategies I have learned.

7. What is your most immediate need? And how can I help/support you with this? - Usually I instinctively know what my most immediate need is; such as 'eating', 'going to see my gp', 'being hugged' etc. But not always. Sometimes I am so distressed I have no idea what to do next. But it is nice to be asked none the less.

8. You can trust me - one of my biggest fears has always been that the person I tell will tell someone else; that I will become the subject of a mother's coffee morning gossip session. I need to know that my privacy will be maintained (within reason of course, such as if my gp needs to know).

9. I will help you find the right person to talk to - so important in recovery is finding the right fit with a really good treatment team, and being supported in my decision to change a member of that team was helpful as I didn't really feel I was 'allowed' to. I lacked so much confidence, I needed encouragement - and my recovery has benefited from this decision.

10. I will come with you to your appointment if you want me to - this not only let me know that I was believed and supported, but also that I was worth the time out of their day to 'waste' sitting around in a drs office. They didn't have anywhere more important to be at that time. And that was huge!

And when all else fails hugs are nice. A hug is so helpful when you are feeling completely worthless. So don't hesitate to hug.

And lastly, did you know that support people can also ring helplines such as that offered by The Butterfly Foundation? So if you want some information, advice, or you just want someone nonjudgmental to talk to too you can ring them and they will listen.

Any more to add? What has been helpful for you to hear? Please share. Let's give support people a little bit of confidence to start the most important conversation they will ever have. 

published by: http://recoverypjstyle.blogspot.com


also check out my flipside post: 10 things *NOT* to say to a mum with an eating disorder

10 things *NOT* to say to a mum with an eating disorder

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Over the past year or so I've had some great friends offer me wonderful advice and support. From people who have freely admitted they don't know anything about eating disorders but will listen anytime I need to talk, to people who have seen it all or lived through it all.

But every now and then I have encountered people, often through no fault of their own, who have said just the wrong things. Things that have set me back. Things that have confused me. And things that have hurt me more than I could ever tell you.

So here's my top ten list of things I have really hated having said to me (in no particular order). Don't get me wrong though - I still actually really appreciate the fact that they said something (mostly) - it is far worse when a friend or loved one suspects or knows you have an eating disorder and chooses not to say anything.


1. I wish I had your problem
Having an eating disorder does not just mean someone is really good at dieting. An eating disorder is not a diet gone wrong. You may wish you were slimmer - but would you wish to have autism or cancer? An eating disorder is an illness, it is not a quick fix to get into your bikini by summer, and nothing will minimise someone's very real pain and suffering faster than if you assume it is.


2. You should recover for your kids.
Now if you are a trained healthcare professional ready to support someone through the fallout of this statement feel free to disagree with me on this one - but it's my list so I'm adding it here. I've had this said to me more times than I care to count, by people thinking it would motivate me. But what I hear is: "You are a lazy bad and worthless mother because you can't even fix this for those beautiful children of yours who you say you'd do anything for". ouch.


3. Surely you're too old to have an eating disorder.
Surprisingly there is no such thing, so just don't say that.


4. You're setting a really bad example for your children.
At the end of the day this may be true. But no one chooses to have an eating disorder, and guilt and blame have no place in recovery or in the support of those trying to recover. You cannot guilt someone into getting better. The guilt only makes it so so much worse.


5. It's just the baby blues, it happens to everyone these days.
Ah, the ubiquitous "stop making a fuss, you're nothing special, get over it" comment. Again, adding guilt is not helpful.


6. You're just bored. You'll get over it once you go back to work.
No, an eating disorder is an illness. Taking up a hobby will not fix this. Someone with an eating disorder may find work really rewarding, but for so many reasons more valuable than just they need a distraction. Building up self-esteem is one of those valuable reasons, but proper treatment is also absolutely necessary.


7. It's the fault of the media.
This implies that firstly that the person with the eating disorder has been sucked in by the media because they're so gullible and easily manipulated. And secondly that once again, it's just a diet gone wrong and they really just want to look like those chicks from Desperate Housewives.

8. Oh man not you too! Does everybody have an eating disorder these days or what?
See #5 if you can't figure out why you shouldn't say this one!


9. Is it just that being a mother is so much harder than you thought, dear?
Well firstly, der, it's much harder than anyone thought. If we all knew how hard it was going to be before we started it, we'd never becomes mums! But seriously, that kind of condescending "I sound like I'm concerned but I'm really just putting you down" comment is not helpful.

10. For heavens sake don't tell anyone!!
And this one I'm not even going to justify with an explanation. If you say this to anyone with an eating disorder then you are worse than a fool, because you are a dangerous fool.

Any more to add? What's the least helpful thing that has ever been said to you by someone trying to offer support? And what advice would you like to give them now?

published by: http://recoverypjstyle.blogspot.com

EDIT: I've published the flipside - 10 things you *should* say to a mum with an eating disorder

parenting through an anxiety attack

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A lot of my ED habits are an attempt to keep my anxiety under control. And for me this is surprising, as I never knew I had a problem with anxiety before. Yes, my eating disorder has been that successful in keeping anxiety under control that I have only started having anxiety attacks this year, now that I am working to eliminate my ED.

So now that I know, I need to learn how to reduce the symptoms of the anxiety without resorting to my dangerous habits. Returning to ED habits will simply prolong my recovery, it will not cure the anxiety, so that's not an option.

So what is an option?

Well, being able to walk away from parenting, certainly isn't.  But so much of the information I have read on how to deal with anxiety attacks assumes that you are able to just disappear for a few hours to recover.

But 99% of the time I can't. There's still a house-full of small people who need to be fed, washed, dressed and driven around - and I have no family here to help me.

So here's what I find helpful.

1. stay away from the caffeine

I like coffee and tea, a lot. It is warm and comforting. But a really bad idea if my heart rate is already through the roof. So I switch to peppermint tea for the duration.

2. prioritise

What can I just skip it today? The swimming lessons? The supermarket? Am I ok with letting them just watch tv or play at the park for an hour instead of rushing around?
I like to work out what I have to do immediately and what can just be 'let go' this time.

3. break it down

If I'm having an anxiety attack I'm not myself.
Normally I'm a can-do-anything type person. In the middle of an attack everything is a struggle and completely overwhelming. But breaking down my evening and my tasks into 15 minute intervals is helpful for me.
eg: here's what my anxiety evening might look like in my head.
(Note, I'm going to 'let go' of reading to the kids and doing the dishes that night because nothing terrible will happen if I don't do those things.)

**Any time I have left over in each 15min block I can have to sit down and breathe. That is then my time as each task doesn't need to start until the next 15min block**
No rushing.

4. breathe

It's that simple. Slow deep, eyes shut, breathing. Slow everything down. No rushing.

5. block it out

If need be I will also put my ipod on quietly in my ears to block out a lot of the chatter that I don't need to hear right away. I can still hear them perfectly well if I need to, but I don't need to hear all the "don't push" "shut up" "give it me" "I was here first" "That's my chair" "don't!" "stop it!" "muuuuuuuuuum I wanted that first" "why can't I have one" "everyone else's mum said yes"
Alright, you get the idea. And you don't need to hear all of that on your anxiety night!

And once I've got them all to bed I go and take a nice hot shower.

And breathe.

And then go to bed...

and remember, I'm new to all this, so if you have some great suggestions of what works for you I'd love you to share! Thanks :)

words to live for

"Mum, when I grow up can I live next door to you? And then when I go to work, you can look after my baby."

Every minute of every day might be a struggle. Sometimes it's a struggle just to breathe. But who could pass up an offer like that?

Not me.

a normal day

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• Slept in a little late this morning. Didn't really matter, we weren't in a rush today.
  
• Ate breakfast before dropping kids at school and then went and had morning tea and some cake to celebrate a friend's birthday. It was lovely cake - plum and walnut crumble (yum!)
  
• Came home and made lunch for the toddler and me.
  
• While the toddler was asleep I tidied the house. Lots of energy too - didn't have to stop to rest each time after making one bed. House looked really good. I was quietly pretty chuffed :)
  
• Went and picked up kids from school.
  
• Came home did some washing. Then let kids watch some tv (no homework tonight). We watched Phineas and Ferb together.
  
• Served up dinner and sat and ate together.
  
• Sent kids up to bed. Got toddler ready for bed - brushed her teeth and read to her.
  
• Went up and read to big kids. Griped at them for leaving their towels on the floor.

Yep it was just a normal day

No panic. No screaming. No crying. No thinking thinking thinking thinking thinking

It was just a normal day...thank god :)

This is a much much better way to be, my friends...

Advice for mothers living with eating disorders

I was so thrilled today to receive an email from the inspirational author of A Girl Called Tim - June Alexander (see my post about her book here). She wrote to let me know about a article she had written on her website containing some fabulous advice from international eating disorder specialists - and was advice specifically given to help mothers living with eating disorders while trying to care for their children.

Thank you so much June - I am so grateful to you for taking the time :)

Please visit June's article here ('mothers with eating disorders') to read all the helpful suggestions for mums.

**Edited 6 Aug 2011 - Now that June has a blog she has updated this article as a blog post found here